"If you were born without wings, do nothing to prevent them growing"
- Coco Chanel
Dear Friend,
We are asking for your support to raise critical funds for medical treatments and therapeutic services provided for our daughter, Madison Moura. Madison Rose and her twin Kevin Russell were born on May 31, 2005. Maddie had a stroke in utero, which caused Hemiplegia and Cerebral Palsy. Simultaneously, she suffered from Volkmann’s Contracture to her left forearm, rendering her left hand deformed with minimal use. In her three and a half years of life, Maddie has had fourteen surgeries. These surgeries and other procedures saved her arm from amputation, helped to reconstruct lost tissue, including bone, skin and muscle and provided some function. In addition, Maddie’s stroke caused right-sided partial paralysis and weakness, spasticity, vision loss and speech delays. Madison wears a brace on her right leg and receives Botox injections every 6 months to help overcome some of these symptoms. Madison receives therapy services every weekday and attends Pre-K at East Fairhaven Elementary School.
Unfortunately, there are many services not covered by health insurance that could be a benefit to Maddie. Maddie will also likely exhaust her occupational therapy benefits within the next couple of years even though her condition will present lifelong challenges. Our immediate need is to fund Constraint Induced Therapy (CIT) at Hasbro Children’s Rehabilitation Department beginning April 6, 2009. The cost of this therapy alone is $15,000 and must be paid before treatment can begin.